Perspectives on rehabilitation of children with cerebral palsy: exploring a cross-cultural view of parents from India and Canada using the international classification of functioning, disability and health

Jindal, Pranay and MacDermid, Joy C. and Rosenbaum, Peter and DiRezze, Briano and *, Amitesh Narayan (2018) Perspectives on rehabilitation of children with cerebral palsy: exploring a cross-cultural view of parents from India and Canada using the international classification of functioning, disability and health. Disability and Rehabilitation, 40 (23). pp. 2745-2755. ISSN 09638288

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Abstract

Purpose: To explore parents’ perspectives on rehabilitation of their child with cerebral palsy and their information needs. Methods: Semistructured interviews were conducted with parents of children with CP from India (n¼11) and Canada (n¼7). Data were analyzed through an interpretive description approach using the International Classification of Functioning, Disability and Health framework. Results: Body Structure and Function: Indian parents were more focused on fixing body structure and function challenges, and independent walking, than Canadian parents. Activity and Participation: All Canadian children were actively involved in school and fun activities in the community. Due to lack of accessible services, Indian children had less school and community participation. Environmental factors: accessible communities, occupational therapy services and greater use of assistive devices enabled Canadian children. Social and cultural beliefs, lack of access to services and inaccessible communities were the barriers experienced by Indian parents. Information needs: both groups needed information to make their child more functional. Conclusion: Canadian parents experience a more enabling environment and express a more social view of their child’s health, suggesting both education on the International Classification of Functioning, Disability and Health principles and services are needed to better enable and empower Indian parents. There remains a need for healthcare professionals and services in both countries to be more familycentered.

Item Type: Article
Uncontrolled Keywords: Perspectives; parents; caregiving; cerebral palsy; International Classification of Functioning; Disability and Health; information needs
Subjects: Allied Health > Mangalore Campus > Physiotherapy
Depositing User: KMCMLR User
Date Deposited: 10 Nov 2018 06:12
Last Modified: 10 Nov 2018 06:12
URI: http://eprints.manipal.edu/id/eprint/152237

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